{"id":50297,"date":"2023-02-05T10:27:05","date_gmt":"2023-02-05T07:27:05","guid":{"rendered":"https:\/\/corludahaber.com\/h\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum\/50297"},"modified":"2023-02-05T10:30:39","modified_gmt":"2023-02-05T07:30:39","slug":"sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum","status":"publish","type":"post","link":"https:\/\/corludahaber.com\/h\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum\/50297","title":{"rendered":"SMA hastas\u0131 G\u00fcney bebe\u011fin annesi: Evlad\u0131m\u0131 kaybetmek istemiyorum"},"content":{"rendered":"<div class=\"corlu-icerikten-once_3\" id=\"corlu-3615620725\"><script type='text\/javascript' src='https:\/\/platform-api.sharethis.com\/js\/sharethis.js#property=5ce8cf08af7d000012cb0ca1&product=inline-reaction-buttons' async='async'><\/script>\r\n\r\n<\/div><p><p>Mehmet Y\u0130RUN\/TEK\u0130RDA\u011e, (DHA)-TEK\u0130RDA\u011e&#8217;\u0131n Ergene il\u00e7esinde SMA Tip-1 te\u015fhisi konulan 3,5 ayl\u0131k G\u00fcney Elmac\u0131 i\u00e7in valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Do\u011fumdan 1 hafta sonra o\u011fluna te\u015fhis konuldu\u011funu belirten Nurcan Elmac\u0131, &#8220;Evlad\u0131m\u0131 kaybetmek istemiyorum. G\u00fcney&#8217;imizi \u00e7ok bekledik&#8221; dedi.<br \/>\nErgene il\u00e7esinde fabrika i\u015f\u00e7isi Salim ile ev kad\u0131n\u0131 Nurcan Elmac\u0131&#8217;n\u0131n \u00e7ocuklar\u0131 G\u00fcney&#8217;e, Spinal M\u00fcsk\u00fcler Atrofi (SMA) Tip-1 te\u015fhisi konulunca, Tekirda\u011f Valili\u011fi\u00a0onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Do\u011fumdan 1 hafta sonra o\u011fluna te\u015fhis konuldu\u011funu anlatan Nurcan Elmac\u0131, &#8220;G\u00fcney&#8217;in tedavisi i\u00e7in Zolgensma ilaca ihtiyac\u0131m\u0131z var. Bunun i\u00e7in de \u00e7ok y\u00fcksek maliyete ihtiyac\u0131m\u0131z var. Valilik izni ile kampanya ba\u015flatt\u0131k. Kampanyam\u0131z\u0131, valilik onaylad\u0131. G\u00fcney&#8217;in bu ilac\u0131 alabilmesi i\u00e7in e\u015fimize, dostumuza, b\u00fcy\u00fck insanlara ihtiyac\u0131m\u0131z var. Herkesin deste\u011fini bekliyoruz&#8221; dedi. G\u00fcney&#8217;i \u00e7ok beklediklerini ifade eden Elmac\u0131, &#8220;Evlad\u0131m\u0131 kaybetmek istemiyorum. G\u00fcney&#8217;imizi\u00a0\u00a0\u00e7ok bekledik. \u00d6zellikle\u00a0ablas\u0131 her gece dua etti. Onun dualar\u0131 kabul oldu. \u00c7ok \u015f\u00fck\u00fcr Rabbim, G\u00fcney&#8217;imizi bize verdi. Fakat hastal\u0131\u011f\u0131 var; bunun da bir \u00e7aresi var. \u00c7are biziz; insanlar, yard\u0131msever insanlar. Bir ilac\u0131 var; G\u00fcney&#8217;e alabilmemiz i\u00e7in yard\u0131msever insanlar\u0131m\u0131z\u0131n deste\u011fini bekliyoruz&#8221; diye konu\u015ftu.<br \/>\n&#8216;G\u00dcNEY&#8217;\u0130M\u0130Z\u0130 YALNIZ BIRAKMAYALIM&#8217;<br \/>\nBaba Salim Elmac\u0131 da o\u011flunun daha 3 ayl\u0131k oldu\u011funu hat\u0131rlatarak, &#8220;\u00c7ocu\u011fumuzun yurt d\u0131\u015f\u0131na gidip, Zolgensma ilac\u0131n\u0131 almas\u0131 gerekiyor. G\u00fcney&#8217;imiz daha \u00e7ok k\u00fc\u00e7\u00fck, 3 ayl\u0131k. 6 aydan sonra belirtilerinin ba\u015flayabilece\u011fini s\u00f6yl\u00fcyorlar. Belirtileri ba\u015flamadan tedavi olursa; G\u00fcney&#8217;imiz, bizler gibi, normal bir birey gibi hayat\u0131na devam edecek. Hi\u00e7bir \u015feyden haberi olmadan devam edecek. L\u00fctfen bu konuda bize destek verin. Yard\u0131mlar\u0131n\u0131z\u0131 bekliyorum. L\u00fctfen bu zorlu s\u00fcre\u00e7te G\u00fcney&#8217;imizi yaln\u0131z b\u0131rakmayal\u0131m, elinden tutal\u0131m. O daha \u00e7ok k\u00fc\u00e7\u00fck. \u015eu an hi\u00e7bir \u015feyin fark\u0131nda de\u011fil. E\u011fer tedavisini olursa, in\u015fallah olacak; buna inan\u0131yoruz. Bu hastal\u0131\u011f\u0131n bir \u00e7aresi var; bunun i\u00e7in m\u00fccadelemizi verece\u011fiz&#8221; dedi.<br \/>\n&#8216;L\u00dcTFEN B\u0130ZE YARDIM ED\u0130N&#8217;<br \/>\nMelisa Elmac\u0131 (10) da\u00a0en b\u00fcy\u00fck hayalinin karde\u015fi ile oynamak oldu\u011funu s\u00f6yledi. Bir karde\u015finin olmas\u0131n\u0131 \u00e7ok istedi\u011fini belirten Elmac\u0131, &#8220;Karde\u015fim oldu ama bir hastal\u0131\u011fa yakaland\u0131. Yaz tatilinde parklara gitmeyi istemiyordum. \u00c7\u00fcnk\u00fc parklarda genellikle karde\u015fi olanlar oluyordu. \u015eu anda karde\u015fim oldu. Fakat yaz tatilinde beraber oynayamayaca\u011f\u0131z diye \u00e7ok korkuyorum. \u00c7\u00fcnk\u00fc karde\u015fimin yurt d\u0131\u015f\u0131nda olan ilaca ihtiyac\u0131 var. Tedavisini almas\u0131 gerekiyor. L\u00fctfen bize yard\u0131m edin. Benim de di\u011fer \u00e7ocuklar gibi karde\u015fimle oynayabilmem i\u00e7in bize yard\u0131m edin&#8221; diye konu\u015ftu. (DHA)<\/p>\n<p>FOTO\u011eRAFLI<\/p><div class=\"corlu-icerik-2\" id=\"corlu-3300393628\"><!-- Admatic AUTO ads START -->\r\n<ins data-publisher=\"adm-pub-155556240050\" data-ad-network=\"659428a24d11b285b616c18d\"   class=\"adm-ads-area\"><\/ins>\r\n<script type=\"text\/javascript\" src=\"https:\/\/static.cdn.admatic.com.tr\/showad\/showad.min.js\"><\/script>\r\n<!-- Admatic AUTO ads END --><\/div>\n<\/p>\n<div id='gallery-1' class='gallery galleryid-50297 gallery-columns-3 gallery-size-full'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_c6e83f0.jpg'><img decoding=\"async\" width=\"600\" height=\"400\" src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAYYAAADcAQMAAABOLJSDAAAAA1BMVEUAAACnej3aAAAAAXRSTlMAQObYZgAAACJJREFUaIHtwTEBAAAAwqD1T20ND6AAAAAAAAAAAAAA4N8AKvgAAUFIrrEAAAAASUVORK5CYII=\" class=\"attachment-full size-full lazy-img\" alt=\"\" data-src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_c6e83f0.jpg\" loading=\"lazy\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_e2054de.jpg'><img decoding=\"async\" width=\"600\" height=\"400\" src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAYYAAADcAQMAAABOLJSDAAAAA1BMVEUAAACnej3aAAAAAXRSTlMAQObYZgAAACJJREFUaIHtwTEBAAAAwqD1T20ND6AAAAAAAAAAAAAA4N8AKvgAAUFIrrEAAAAASUVORK5CYII=\" class=\"attachment-full size-full lazy-img\" alt=\"\" data-src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_e2054de.jpg\" loading=\"lazy\" \/><\/a>\n\t\t\t<\/div><\/figure><figure 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landscape'>\n\t\t\t\t<a href='https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_120f0a8.jpg'><img decoding=\"async\" width=\"600\" height=\"400\" src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAYYAAADcAQMAAABOLJSDAAAAA1BMVEUAAACnej3aAAAAAXRSTlMAQObYZgAAACJJREFUaIHtwTEBAAAAwqD1T20ND6AAAAAAAAAAAAAA4N8AKvgAAUFIrrEAAAAASUVORK5CYII=\" class=\"attachment-full size-full lazy-img\" alt=\"\" data-src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_120f0a8.jpg\" loading=\"lazy\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_e31dac8.jpg'><img decoding=\"async\" width=\"600\" height=\"400\" src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAYYAAADcAQMAAABOLJSDAAAAA1BMVEUAAACnej3aAAAAAXRSTlMAQObYZgAAACJJREFUaIHtwTEBAAAAwqD1T20ND6AAAAAAAAAAAAAA4N8AKvgAAUFIrrEAAAAASUVORK5CYII=\" class=\"attachment-full size-full lazy-img\" alt=\"\" data-src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_e31dac8.jpg\" loading=\"lazy\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_fe25b4b.jpg'><img decoding=\"async\" width=\"600\" height=\"400\" src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAYYAAADcAQMAAABOLJSDAAAAA1BMVEUAAACnej3aAAAAAXRSTlMAQObYZgAAACJJREFUaIHtwTEBAAAAwqD1T20ND6AAAAAAAAAAAAAA4N8AKvgAAUFIrrEAAAAASUVORK5CYII=\" class=\"attachment-full size-full lazy-img\" alt=\"\" data-src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2023\/02\/sma-hastasi-guney-bebegin-annesi-evladimi-kaybetmek-istemiyorum_fe25b4b.jpg\" loading=\"lazy\" \/><\/a>\n\t\t\t<\/div><\/figure>\n\t\t<\/div>\n\n<div class=\"corlu-icerikten-sonra_3\" id=\"corlu-3636172290\"><p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter\" src=\"https:\/\/www.corludahaber.com\/bahcesehir.jpg\" alt=\"\" width=\"624\" height=\"196\" \/><\/p>\n<table style=\"text-align: left; width: 100%;\" border=\"1\" cellspacing=\"2\" cellpadding=\"2\">\n<tbody>\n<tr>\n<td style=\"background-color: #050805;\"><span style=\"font-size: 12pt;\"><small><small><em><strong><big><span style=\"color: #ff0000;\">Haber ve resimlerin telif haklar\u0131ndan dolay\u0131 kullan\u0131m\u0131 yasakt\u0131r<span style=\"color: #000000;\">.<\/span><\/span><span style=\"color: #000000;\">\u00a0<\/span><span style=\"color: #ffffff;\">Yaz\u0131l\u0131 izni al\u0131nmadan hi\u00e7bir yaz\u0131l\u0131, g\u00f6rsel, i\u015fitsel i\u00e7erik kopyalanamaz, de\u011fi\u015ftirilemez, yay\u0131nlanamaz veya sat\u0131lamaz. Aksi halde<\/span>\u00a0<span style=\"color: #ff0000;\">5846<span style=\"color: #ffffff;\">\u00a0<\/span><\/span><span style=\"color: #ffffff;\">say\u0131l\u0131 Fikir ve Sanat Eserleri Kanunu\u2019na ve<\/span>\u00a0<span style=\"color: #800000;\"><span style=\"color: #ff0000;\">6102<\/span><span style=\"color: #ffffff;\">\u00a0<\/span><\/span><span style=\"color: #ffffff;\">say\u0131l\u0131 maddesine g\u00f6re<\/span>\u00a0<span style=\"color: #ff0000;\">gerekli i\u015flemler uygulanacakt\u0131r.<\/span><br \/>\n<span style=\"color: #ffffff;\">\u00a9 Copyright 2014<\/span><\/big><\/strong><\/em><\/small><\/small><\/span><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p><small><small>\u00a0<\/small><\/small><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Mehmet Y\u0130RUN\/TEK\u0130RDA\u011e, (DHA)-TEK\u0130RDA\u011e&#8217;\u0131n Ergene il\u00e7esinde SMA Tip-1 te\u015fhisi konulan 3,5 ayl\u0131k G\u00fcney Elmac\u0131 i\u00e7in valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Do\u011fumdan 1 hafta sonra o\u011fluna te\u015fhis konuldu\u011funu belirten Nurcan Elmac\u0131, &#8220;Evlad\u0131m\u0131 kaybetmek istemiyorum. G\u00fcney&#8217;imizi \u00e7ok bekledik&#8221; dedi. Ergene il\u00e7esinde fabrika i\u015f\u00e7isi Salim ile ev kad\u0131n\u0131 Nurcan Elmac\u0131&#8217;n\u0131n \u00e7ocuklar\u0131 G\u00fcney&#8217;e, Spinal M\u00fcsk\u00fcler Atrofi (SMA) Tip-1 te\u015fhisi konulunca, &hellip;<\/p>\n","protected":false},"author":1,"featured_media":50298,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[27],"tags":[],"class_list":["post-50297","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-yasam"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.3 (Yoast SEO v23.3) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>SMA hastas\u0131 G\u00fcney bebe\u011fin annesi: Evlad\u0131m\u0131 kaybetmek istemiyorum | \u00c7orlu&#039;da Haber<\/title>\n<meta name=\"description\" content=\"SMA hastas\u0131 G\u00fcney bebe\u011fin annesi: Evlad\u0131m\u0131 kaybetmek istemiyorum | \u00c7orlu&#039;da 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