{"id":33833,"date":"2022-06-19T16:13:07","date_gmt":"2022-06-19T13:13:07","guid":{"rendered":"https:\/\/corludahaber.com\/h\/?p=33833"},"modified":"2022-06-19T16:13:07","modified_gmt":"2022-06-19T13:13:07","slug":"6-makineye-bagli-smali-ecrinin-annesi-zaman-en-buyuk-dusmanimiz","status":"publish","type":"post","link":"https:\/\/corludahaber.com\/h\/6-makineye-bagli-smali-ecrinin-annesi-zaman-en-buyuk-dusmanimiz\/33833","title":{"rendered":"6 Makineye Ba\u011fl\u0131 SMA&#8217;l\u0131 Ecrin&#8217;in Annesi: Zaman, En B\u00fcy\u00fck D\u00fc\u015fman\u0131m\u0131z"},"content":{"rendered":"<div class=\"corlu-icerikten-once_3\" id=\"corlu-4044014053\"><script type='text\/javascript' src='https:\/\/platform-api.sharethis.com\/js\/sharethis.js#property=5ce8cf08af7d000012cb0ca1&product=inline-reaction-buttons' async='async'><\/script>\r\n\r\n<\/div><div>\n<p>\u00a0<em><strong>TEK\u0130RDA\u011e, (DHA)-\u00a0<\/strong> <\/em>TEK\u0130RDA\u011e&#8217;\u0131n \u00c7erkezk\u00f6y il\u00e7esinde, Spinal M\u00fcsk\u00fcler Atrofi (SMA) te\u015fhisi konulan 15 ayl\u0131k Ecrin Yi\u011fit&#8217;in tedavisi i\u00e7in valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Evde 6 makineye ba\u011fl\u0131 olarak hayat m\u00fccadelesi veren Ecrin&#8217;in annesi Zeliha Yi\u011fit, &#8220;Ger\u00e7ekten zaman\u0131m\u0131z yok. Zaman, en b\u00fcy\u00fck d\u00fc\u015fman\u0131m\u0131z. Makine olmadan nefes dahi bile alamaz. K\u0131z\u0131m paras\u0131zl\u0131k y\u00fcz\u00fcnden benden gitmesin istemiyorum&#8221; dedi.<\/p><div class=\"corlu-icerik-2\" id=\"corlu-436917222\"><!-- Admatic AUTO ads START -->\r\n<ins data-publisher=\"adm-pub-155556240050\" data-ad-network=\"659428a24d11b285b616c18d\"   class=\"adm-ads-area\"><\/ins>\r\n<script type=\"text\/javascript\" src=\"https:\/\/static.cdn.admatic.com.tr\/showad\/showad.min.js\"><\/script>\r\n<!-- Admatic AUTO ads END --><\/div>\n<p>\u00c7erkezk\u00f6y il\u00e7esine ba\u011fl\u0131 K\u0131z\u0131lp\u0131nar Mahallesi&#8217;nde in\u015faat ustas\u0131 Zeydin (30) ile ev kad\u0131n\u0131 Zeliha Yi\u011fit&#8217;in (22) 15 ay \u00f6nce &#8216;Ecrin&#8217; ad\u0131n\u0131 verdikleri k\u0131zlar\u0131 d\u00fcnyaya geldi. 6 ayl\u0131k Ecrin&#8217;e kontrol i\u00e7in g\u00f6t\u00fcr\u00fcld\u00fc\u011f\u00fc hastanede SMA-1 tip te\u015fhisi koyuldu. Tedavi s\u00fcrecine ba\u015flan\u0131rken, bir yandan da ila\u00e7 ve di\u011fer masraflar i\u00e7in Tekirda\u011f Valili\u011fi&#8217;nin onay\u0131yla yard\u0131m kampanyas\u0131 duyuruldu.<\/p>\n<div style=\"width: 400px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-33833-1\" width=\"400\" height=\"300\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2022\/06\/tekirdag-6_makineye_bagli_sma_li_ecrin_in_annesi_zaman_en_buyuk_dusmanimiz.mp4?_=1\" \/><a href=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2022\/06\/tekirdag-6_makineye_bagli_sma_li_ecrin_in_annesi_zaman_en_buyuk_dusmanimiz.mp4\">https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2022\/06\/tekirdag-6_makineye_bagli_sma_li_ecrin_in_annesi_zaman_en_buyuk_dusmanimiz.mp4<\/a><\/video><\/div>\n<p>&nbsp;<\/p>\n<p>&#8216;L\u00dcTFEN SES\u0130M\u0130Z\u0130 DUYUN&#8217;<\/p>\n<p>K\u0131z\u0131n\u0131n acilen yurt d\u0131\u015f\u0131nda tedavi edilmesi gerekti\u011fini belirten Zeydin Yi\u011fit, &#8220;Hastal\u0131\u011f\u0131 SMA-1, hasta \u00f6l\u00fcmc\u00fcl kas hastas\u0131. 6 ayl\u0131kken kontrol ama\u00e7l\u0131 doktora g\u00f6t\u00fcrd\u00fc\u011f\u00fcm\u00fczde SMA te\u015fhisi konuldu. 7&#8217;nci ay\u0131nda rahats\u0131zland\u0131, 2 ay yo\u011fun bak\u0131mda kald\u0131. \u015eu an 6 makineye ba\u011fl\u0131 olarak evde bak\u0131yoruz. Bunun ilac\u0131 yurt d\u0131\u015f\u0131nda. Biz de valilik onayl\u0131 kampanya ba\u015flatt\u0131k.<\/p>\n<p>Burada herkesin deste\u011fini istiyoruz. Ecrin, bizim ilk evlad\u0131m\u0131z. Geceleri ba\u015f\u0131nda n\u00f6betle\u015fe bekliyoruz. Bazen derin uyudu\u011funda korkuyoruz. &#8216;Ya\u015f\u0131yor mu, ya\u015fam\u0131yor mu&#8217; diyerek uyand\u0131r\u0131p, kontrol ediyor. Bizim i\u00e7in zor bir s\u00fcre\u00e7. L\u00fctfen sesimizi duyun. K\u0131z\u0131m \u00f6lmesin, deste\u011fe ihtiyac\u0131m\u0131z var&#8221; dedi.<\/p>\n<p>&#8216;BENDEN G\u0130TMES\u0130N\u0130 \u0130STEM\u0130YORUM\u2019<\/p>\n<p>K\u0131z\u0131n\u0131n hayata tutunabilmesi i\u00e7in zamanla yar\u0131\u015ft\u0131klar\u0131n\u0131 belirten anne Zeliha Yi\u011fit de &#8220;K\u0131z\u0131m\u0131n durumu stabil. \u015eu an yurt d\u0131\u015f\u0131ndaki ilac\u0131n\u0131 bekliyor. Sizlerden gelecek destekleri bekliyor. Ger\u00e7ekten zaman\u0131m\u0131z yok. Zaman, en b\u00fcy\u00fck d\u00fc\u015fman\u0131m\u0131z. Ecrin&#8217;in \u015fu an hareketleri var sadece o ilaca kavu\u015fmas\u0131 laz\u0131m. \u0130la\u00e7 i\u00e7in sizden ger\u00e7ekten destek bekliyoruz. Ecrin, 6 makineye ba\u011fl\u0131 hayat m\u00fccadelesi veriyor. Burnundan besleniyor, bo\u011faz\u0131 delik. Makine olmadan nefes dahi bile alamaz. K\u0131z\u0131m paras\u0131zl\u0131k y\u00fcz\u00fcnden benden gitmesin istemiyorum. L\u00fctfen bana destek olun. K\u0131z\u0131m\u0131 ya\u015fatal\u0131m&#8221; diye konu\u015ftu.<\/p>\n\n<p>\u00d6te yandan Ecrin&#8217;in tedavisi i\u00e7in 20 milyon liraya ihtiya\u00e7 oldu\u011fu belirtilirken, bug\u00fcne kadar\u00a0paran\u0131n\u00a0y\u00fczde 5&#8217;inin topland\u0131\u011f\u0131 \u00f6\u011frenildi. (DHA)<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33844 size-full\" src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2022\/06\/6-makineye-bagli-smali-ecrinin-annesi-zaman-en-buyuk-dusmanimiz_6154_dhaphoto3-scaled.jpg\" alt=\"\" width=\"1792\" height=\"2560\" \/><\/p>\n\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33846 size-full\" src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2022\/06\/6-makineye-bagli-smali-ecrinin-annesi-zaman-en-buyuk-dusmanimiz_6154_dhaphoto8-scaled.jpg\" alt=\"\" width=\"2560\" height=\"2109\" \/><\/p>\n<\/div>\n<blockquote><p><span style=\"color: #ff0000;\">Sitemiz <\/span><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/corludahaber.com\/h\/wp-content\/uploads\/2022\/06\/dha-logo-white.png\" alt=\"\" width=\"80\" height=\"80\" \/>\u00a0<span style=\"color: #ff9900;\"><span style=\"color: #ff0000;\">abonesidir. Bu kategoride yer alan haberler <span style=\"color: #ffffff;\">Demir\u00f6ren Haber Ajans\u0131<\/span> Muhabirleri taraf\u0131ndan ge\u00e7ilen haberlerdir ve sitemiz edit\u00f6rleri taraf\u0131ndan herhangi bir m\u00fcdahalede bulunulmam\u0131\u015ft\u0131r.<\/span><\/span><\/p><\/blockquote>\n<div class=\"corlu-icerikten-sonra_3\" id=\"corlu-1894617351\"><p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter\" src=\"https:\/\/www.corludahaber.com\/bahcesehir.jpg\" alt=\"\" width=\"624\" height=\"196\" \/><\/p>\n<table style=\"text-align: left; width: 100%;\" border=\"1\" cellspacing=\"2\" cellpadding=\"2\">\n<tbody>\n<tr>\n<td style=\"background-color: #050805;\"><span style=\"font-size: 12pt;\"><small><small><em><strong><big><span style=\"color: #ff0000;\">Haber ve resimlerin telif haklar\u0131ndan dolay\u0131 kullan\u0131m\u0131 yasakt\u0131r<span style=\"color: #000000;\">.<\/span><\/span><span style=\"color: #000000;\">\u00a0<\/span><span style=\"color: #ffffff;\">Yaz\u0131l\u0131 izni al\u0131nmadan hi\u00e7bir yaz\u0131l\u0131, g\u00f6rsel, i\u015fitsel i\u00e7erik kopyalanamaz, de\u011fi\u015ftirilemez, yay\u0131nlanamaz veya sat\u0131lamaz. Aksi halde<\/span>\u00a0<span style=\"color: #ff0000;\">5846<span style=\"color: #ffffff;\">\u00a0<\/span><\/span><span style=\"color: #ffffff;\">say\u0131l\u0131 Fikir ve Sanat Eserleri Kanunu\u2019na ve<\/span>\u00a0<span style=\"color: #800000;\"><span style=\"color: #ff0000;\">6102<\/span><span style=\"color: #ffffff;\">\u00a0<\/span><\/span><span style=\"color: #ffffff;\">say\u0131l\u0131 maddesine g\u00f6re<\/span>\u00a0<span style=\"color: #ff0000;\">gerekli i\u015flemler uygulanacakt\u0131r.<\/span><br \/>\n<span style=\"color: #ffffff;\">\u00a9 Copyright 2014<\/span><\/big><\/strong><\/em><\/small><\/small><\/span><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p><small><small>\u00a0<\/small><\/small><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>\u00a0TEK\u0130RDA\u011e, (DHA)-\u00a0 TEK\u0130RDA\u011e&#8217;\u0131n \u00c7erkezk\u00f6y il\u00e7esinde, Spinal M\u00fcsk\u00fcler Atrofi (SMA) te\u015fhisi konulan 15 ayl\u0131k Ecrin Yi\u011fit&#8217;in tedavisi i\u00e7in valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Evde 6 makineye ba\u011fl\u0131 olarak hayat m\u00fccadelesi veren Ecrin&#8217;in annesi Zeliha Yi\u011fit, &#8220;Ger\u00e7ekten zaman\u0131m\u0131z yok. Zaman, en b\u00fcy\u00fck d\u00fc\u015fman\u0131m\u0131z. Makine olmadan nefes dahi bile alamaz. K\u0131z\u0131m paras\u0131zl\u0131k y\u00fcz\u00fcnden benden gitmesin istemiyorum&#8221; dedi. \u00c7erkezk\u00f6y &hellip;<\/p>\n","protected":false},"author":151,"featured_media":33845,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[27],"tags":[],"class_list":["post-33833","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-yasam"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.3 (Yoast SEO v23.3) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>6 Makineye Ba\u011fl\u0131 SMA&#039;l\u0131 Ecrin&#039;in Annesi: Zaman, En B\u00fcy\u00fck D\u00fc\u015fman\u0131m\u0131z | \u00c7orlu&#039;da Haber<\/title>\n<meta name=\"description\" content=\"6 Makineye Ba\u011fl\u0131 SMA&#039;l\u0131 Ecrin&#039;in Annesi: Zaman, En B\u00fcy\u00fck D\u00fc\u015fman\u0131m\u0131z | Ya\u015fam \u00c7orlu&#039;da Haber\" \/>\n<meta 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